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The British Thyroid Foundation (BTF) is a UK-based, patient-led, registered charity dedicated to supporting people with thyroid disorders and helping their families and people around them to understand the condition.[1]
| Abbreviation | BTF |
|---|---|
| Formation | 1991 |
| Legal status | Charity |
| Headquarters | Suite 12, One Sceptre House, Hornbeam Square North, Harrogate, HG2 8BP |
Region served | UK |
| Affiliations | British Thyroid Association |
Staff | 6 |
Volunteers | 20 |
| Website | BTF |
Function
editThe British Thyroid Foundation is a patient support organisation. The aims of the BTF are to help improve understanding of thyroid disease; represent the patient perspective to medical professionals; offer a peer support network and fund research into thyroid function and thyroid disease to improve patient outcomes.
The BTF is recognised by the British Thyroid Association,[2] the British Association of Endocrine and Thyroid Surgeons,[3] the British Society for Paediatric Endocrinology and Diabetes,[4] and the Society for Endocrinology[5] as a helpful resource. It is also listed as a carer centre and service by National Health Service (NHS) England.[6]
History
edit[7] The British Thyroid Foundation was founded in 1991 by Janis Hickey MBE after she was diagnosed with Graves and thyroid eye disease. With the encouragement of Sir Richard Bayliss KCVO,[8] who was involved with the British Thyroid Association, the BTF was set up as a registered charity[9] based in Harrogate, North Yorkshire, UK. Past and present patrons include, Clare Balding,[10] Jenny Pitman[11] and Gay Search.[12]
Activities
editThe British Thyroid Foundation provides a support network to thyroid patients through its local support groups, volunteer telephone contacts and closed Facebook groups, run by people with thyroid disease. The BTF offers a medical query answering service. BTF News is the regular member newsletter featuring articles about thyroid research and treatment, patient stories and local group activities.[13]
Campaigns
editThe Cancer Project of the BTF has a goal to provide information, support and help to thyroid cancer patients and to help improve treatment and care in collaboration with medical professionals and other cancer groups. The Children's Project aims to help parents and carers find information and support about their children's condition, the BTF produces resources and holds regular information events for families.[14] The Thyroid in Pregnancy program aims to educate patients, medical professionals and the general public with current research-based information about thyroid disease in pregnancy. In 2018 the ‘BTF Thyroid disorders and pregnancy' information prescription tools were adopted by EMIS Health.[15] Originally developed by Anh Tran, the tools aim to help patients and clinicians better understand the importance of managing thyroid function during conception and pregnancy.
Notes
edit- ^ "British Thyroid Foundation".
- ^ "Welcome to the official website of the British Thyroid Association". www.british-thyroid-association.org. Retrieved 28 November 2022.
- ^ "Patients – British Association of Endocrine and Thyroid Surgeons (BAETS)". Retrieved 28 November 2022.
- ^ "BSPED |Patient Resources". www.bsped.org.uk. Retrieved 28 November 2022.
- ^ "Society for Endocrinology". www.endocrinology.org. Retrieved 28 November 2022.
- ^ "Overview - British Thyroid Foundation Nationwide - NHS". National Health Service. Retrieved 28 November 2022.
- ^ "BRITISH THYROID FOUNDATION - Charity 1006391". register-of-charities.charitycommission.gov.uk. Retrieved 29 November 2022.
- ^ "Richard Bayliss", Wikipedia, 1 August 2022, retrieved 28 November 2022
- ^ "BRITISH THYROID FOUNDATION - Charity 1006391". register-of-charities.charitycommission.gov.uk. Retrieved 29 November 2022.
- ^ "Clare Balding", Wikipedia, 22 November 2022, retrieved 28 November 2022
- ^ "Jenny Pitman", Wikipedia, 18 October 2022, retrieved 28 November 2022
- ^ "Gay Search", Wikipedia, 17 January 2022, retrieved 28 November 2022
- ^ "Overview - British Thyroid Foundation Nationwide - NHS". www.nhs.uk. Retrieved 29 November 2022.
- ^ Childhood and Congenital Hypothyroidism Patient UK
- ^ "EMIS Health", Wikipedia, 8 September 2022, retrieved 29 November 2022