Emily Muller (born 4 April 1999)[1] is a disability rights activist from Chicago.[1] Her focus revolves largely around psychosocial issues that impact seriously ill children and young adults, and legislation that affects rare disease patients. She began her activism at the age of thirteen after creating the website Emily's Fight. She has spoken at events such as the SHINE conference,[2] Starlight Midwest Gala,[3] Nikki Rich premiere,[4] Rare Disease Legislative Advocates,[5] and has given a TEDx Talk.[6] She is also a contributor to The Mighty.[7][8][9] During the summer of 2016 she advocated the passage of the 21st Century Cures Act by using Internet activism in support of the bill.[10][11] When the 21st Century Cures Act passed the Senate in 2016, Muller was recognized by the United States House Committee on Energy and Commerce for her work promoting the legislation.[12]
Emily Muller | |
|---|---|
 | |
| Born | April 4, 1999 |
| Nationality | American |
| Known for | Activism Speeches |
| Movement | CuresNow |
| Website | https://emilysfight.com |
Filmography
editTelevision
edit| Year | Title | Role | Notes |
|---|---|---|---|
| 2016 | Shameless | Woman With Walker | Episode: #AbortionRules |
References
edit- ^ a b "Emily Muller". IMDb. Retrieved 2016-05-14.
- ^ "SHINE". www.facebook.com. Retrieved 2016-05-14.
- ^ "Starlight Gala 2014 | Facebook". www.facebook.com. Retrieved 2016-05-14.
- ^ "Richie Sambora Photos: Nikki Rich Launch With Co-Designers Nikki Lund And Richie Sambora At Von Maur". Zimbio. Retrieved 2016-05-14.
- ^ "Drugmakers Help Turn Patients With Rare Diseases Into D.C. Lobbyists". Kaiser Health News. 2017-04-10. Retrieved 2017-07-25.
- ^ TEDx Talks (2014-12-08), How to move forward while living in Fear | Emily Muller | TEDxYouth@LakeVilla, retrieved 2016-05-14
- ^ "Emily Muller | The Mighty Contributor". The Mighty. Retrieved 2017-07-25.
- ^ "Why I'm Fighting for Access to Off-Label Medicine". The Mighty. Retrieved 2017-07-25.
- ^ "To My Future Self, From a 16-Year-Old Facing Chronic Conditions". The Mighty. Retrieved 2017-07-25.
- ^ "Rare Diseases in Washington: #CuresRally for #CuresNow". Rare Disease Report. Retrieved 2017-01-08.
- ^ "TEENS WHO INSPIRE: Leading the Way on the #Path2Cures". Energy and Commerce Committee. 2016-08-15. Retrieved 2017-01-08.
- ^ "Thank you, Emily". Energy and Commerce Committee. 2016-12-09. Retrieved 2017-01-08.