Talk:Arteriovenous malformation

WOw

WOw man some of that stuff is dangerousZomborg 20:02, 17 July 2006 (UTC)

I think this article could have some example images of people with AVM. Like that girl on TV with the swollen nose. I'm pretty sure she suffered AVM too.

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The current article mentions an arteriorgram. Wikipedia has an redirect entry for arteriogram, but not for arteriorgram (note slight difference in spelling). There are 300x as many google hits for the former vs. the latter. I was going to "correct" the spelling, and link the term in the article, but am not familiar with the terminology, and didn't want to risk introducing incorrect information. Any experts here? 72.94.96.128 17:34, 14 December 2006 (UTC)

I'm not an expert, but the use of arteriography shows that arteriogram is clearly the term that was meant to be used here. I've gone ahead and made the change. --68.13.147.241 19:28, 14 December 2006 (UTC)

Arteriogram is the usage that was used around me when I had the actual test. Alcourt 05:43, 22 December 2006 (UTC)

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The phrasing on it not being hereditary is obtuse, it took me several readings to get the intended meaning.

Other things that might be worth mentioning:

Most AVMs are found only in autopsy of persons who died of unrelated causes. (Sorry, don't recall the sources I found on this). NPR was citing figures of approximately 300k people in the US estimated to have this condition. I saw somewhere it claimed (and this fits my understanding as well) that most AVMs are found in persons aged around 9-35. No, I don't understand why.

Larger AVMs often have a "slow leak" hemmoraging which can create symptoms. Every survivor story I've read of sudden massive hemmorage has involved a very small AVM or blood vessel.

Normal treatment involves either surgical blockage/removal of the impacted blood vessels (often with aneurysm clips) or radiation surgery (I want to say gamma knife) to shrink the impacted blood vessels. Another technique using a "glue" to block off the blood vessels is also used at times.

Since I don't have references handy, I'm not editing the main article yet.

Alcourt 05:43, 22 December 2006 (UTC)

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This page looks weird. I appreciate the effort of trying to make the whole thing make sense to laymen, but, describing AVM primarily with phrases like "jamming a tangle of flexible soda straws through the sponge" and "a tangle of spaghetti noodles" etc. are still rather confusing. I think it would be better to give a proper description with medical lexicon, and perhaps add the allegories sparingly.

Also, I believe the paragraph describing the circulatory system is too much - readers can always refer to the relevant articles. This article should be mainly about the medical condition. 218.102.218.204 07:55, 14 May 2007 (UTC)

Unfortunately, doctors and medical references often use similar allegorical language. It doesn't help that it seems that any of a series of malformations of the capillary seem to be called an AVM. In some literature, it states that an AVM has no capillary, others state that the capillaries are brittle and huge, "like a tangled nest of worms". I agree that it should be cleaned up, I'm just at a loss to find a good way to explain it. The NIH page stays very generic and references defects. Maybe this article should be similarly generic at first and then give the more colorful descriptions separately? Alcourt 13:36, 14 May 2007 (UTC)

I'm not sure, but I think that hemorrhage risk in von Hippel-Lindau disease isn't associated with AVM, but with hemangioblastoma. Filip en (talk) 04:31, 20 February 2008 (UTC)

External links

Wikipedia's external links policy and the specific guidelines for medicine-related articles do not permit the inclusion of external links to non-encyclopedic material, particularly including internet chat boards and e-mail discussion groups. Because I realize that most normal editors haven't spent much time with these policies, please let me provide specific information from the guidelines:

• This page, which applies to all articles in the entire encyclopedia, says that links "to social networking sites (such as MySpace or Fan sites), discussion forums/groups (such as Yahoo! Groups), USENET newsgroups or e-mail lists" are to be avoided.

• This page deprecates ""helpful" external links, such as forums, self-help groups and local charities."

• This medical-specific page reinforces the pan-Wiki rules, with a note that "All links must meet Wikipedia's external links guidelines, which in particular exclude discussion forums."

Wikipedia is an encyclopedia, and while it may occasionally be useful to patients or their families, it is not a web directory for support groups. Please do not re-insert links that do not conform to the standard rules. Any editor, BTW, is welcome to read all of the rules and perform an "audit" in the remaining links. Thanks, WhatamIdoing (talk) 03:58, 28 April 2008 (UTC)

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"WhatamIdoing", thank you very much for monitoring this page. I reviewed the external link policy and while you are correct in reminding us that Wikipedia deprecates "helpful external links, such as forums, self-help groups and local charities," the policy also states "If the disease is very rare, then a manageable set of charitable organisations may be of encyclopaedic interest." Based on that, I am including a link to AVM Survivors Network because this is a "very rare medical condition" and there is no suitable page listing web-based support groups that would be suitable to link to, as suggested in the policy. If you wish to discuss this, you may definitely contact me via AVM Survivors Network site. Sincerely, AVM Survivors Network Moderator, 31 May 2008 —Preceding unsigned comment added by 69.153.131.26 (talk) 21:58, 31 May 2008 (UTC)

That rule doesn't apply because AVM Survivors Network does not appear to be a charitable organization: it's an internet chat group.

Furthermore, as a moderator for the group, you are specifically not allowed to insert a link to your site anywhere on Wikipedia, no matter how relevant or justified, because of the Conflict of Interest rules. WhatamIdoing (talk) 00:40, 1 June 2008 (UTC)

Here in the US, registered charities are listed at guidestar.org. Where's your listing?

And where's your compliance with Wikipedia's conflict of interest policy?

And where's your compliance with Wikipedia's NO LINKS TO CHAT BOARDS rule? WhatamIdoing (talk) 20:51, 1 June 2008 (UTC)

Good points, WhatamIdoing.

Not all registered charities are listed at guidestar.org. One must register with them.

True, as moderator I will not add this external link.

We are a new online support site who also are in the process of funding research and expanding into other services. In your opinion, how can we modify the site to be considered a charitable organization instead of just considered a "chat board"? —Preceding unsigned comment added by 70.247.53.184 (talk) 14:24, 2 June 2008 (UTC)

This is by no stretch of the imagination a good link for the article. I'd recommend adding http://search.dmoz.org/cgi-bin/search?search=Arteriovenous+malformation as a way of giving people the option to look at a broader and managed set of websites. Tim Vickers (talk) 18:47, 2 June 2008 (UTC)

Trimmed out the Seattle link as it was a generic information page and the box at the top already has several. Trimmed out the avmfoundation page as it seems to just accept donations; the avmsupport organizations both had more information and more links.

Unfortunately the DMOZ doesn't have a AVM page, though it does appear on some of the other pages; given MEDMOS's loophole for rare disorders, I'm actually OK with leaving these two links in and not using a DMOZ (there is an EL restriction against linking to search result pages, and you have to dig a bit to get to them; plus, it's the 2 links that are already on the page, I like having DMOZ when it provides something other than what is already there and significantly reduces the links; this does only the latter, and only by one link. WLU (talk) 18:52, 2 June 2008 (UTC)

Okay, perhaps what might make sense is to get a category for AVM on DMOZ and, once it's up, adding this link to the article. Fair enough? —Preceding unsigned comment added by 70.251.18.174 (talk) 21:28, 2 June 2008 (UTC)

registered charities

70.247,

Since you asked, my definition of a "real" charity in the US is one that filed a 1023 with the IRS and got it approved. I did not find your org listed in IRS Pub 78 or its most recent update; you are therefore not a real charity (or else an extremely new one). Inclusion in Guidestar.org is automatic for charities: they pull the list from the IRS's database. You can convince me otherwise by providing me with the org's tax id number and the case number at the top of the IRS determination letter.

But let me be clear: Just because a website is run by a charity does not mean that it gets linked by Wikipedia. External links should have information (not chat boards or fundraising information). Linked sites should comply with all of the WP:EL and [WPMEDMOS]] rules, particularly the issue of being interesting or useful to the general reader (instead of primarily being of interest to patients or professionals). Above all, there must be some good reason to include them: Wikipedia is NOT a web directory.

So if you wanted to create a linkable website, then you need to look at those rules and see what applies. In a nutshell, we link to pages that provide more information than a "perfect" article or a "unique resource" that you wouldn't expect in an encyclopedia. As an example of a unique resource, I'd bet that some articles about particular math or finance concepts include links to specialized online calculators. I don't know what (if anything) the equivalent would be for this area, but perhaps that will give you an idea.

The DMOZ solution might be simpler and more appropriate, however. WhatamIdoing (talk) 04:23, 4 June 2008 (UTC)

In pop culture

Death to pop culture! That being said, I trimmed the pop culture section down. MEDMOS does allow for some, but there's no need for a bullet for each House episode particularly when they have their own dedicated pages. Also removed Grey's Anatomy, which is a single episode that doesn't seem to have its own link. 6 Feet Under it's a major story arc, not just a knock-off, so I left it. The unlinked book I removed, and the broadway play I left in. The Who documentary was unlinked, and had been tagged - per WP:PROVEIT, until there's a citation it's been removed. WLU (talk) 18:52, 2 June 2008 (UTC)

AVM's can occur in ANY part of the body.

Brain AVM's seem to be the kind that this reference is written for. While they are the most prevalent in the brain, they can occur anywhere. In the diagnosis section of this page it mentions specific "places," including some outside the brain, but excludes many other places. It should simply read something like "can occur anywhere in the body." and maybe can link to the "cerebral avm" wiki page.

The symptoms sections seems to relate specifically to brain symptoms.

One of the major treatments for all types of AVM's is embolization, yet this is left out completely.

I happen to have an Mandibular AVM located in my jaw, cheek, lip, and tongue. I know others with the same condition, and also those with it in their arms, legs, etc.

There is already a seperate Wiki page for "cerebral arteriovenous malformations." Wouldn't it make sense for THIS more general page to be a little more all encompassing?

I'm not familiar enough with the rules of Wiki to know what I can and cannot actually edit on the "article" so I thought I would add this info to the talk area and someone else may be able to make the page a little more on topic.

Facial AVM (talk) 00:38, 15 August 2008 (UTC)Facial AVM

Thank you for your suggestion. When you feel an article needs improvement, please feel free to make those changes. Wikipedia is a wiki, so anyone can edit almost any article by simply following the edit this page link at the top. The Wikipedia community encourages you to be bold in updating pages. Don't worry too much about making honest mistakes — they're likely to be found and corrected quickly. If you're not sure how editing works, check out how to edit a page, or use the sandbox to try out your editing skills. New contributors are always welcome. You don't even need to log in (although there are many reasons why you might want to). --Arcadian (talk) 05:28, 15 August 2008 (UTC)

Header

Do you think anyone is very likely to confuse arteriovenous malformations with any of the topics listed on the acronym disambiguation page for AMV? I think it would be better to delete this.

Also, cerebral AVMs present specific diagnostic and management challenges, so I agree that they should have a separate page. Should we add a header to this page offering users redirection to the cerebral AVM page? Empyema (talk) 01:58, 28 September 2008 (UTC)

My grandson has one in his upper arm. (deltoid) It was aggravated by being hit with a basketball and diagnosed by a radiologist with an ultrasound with color. He is 7 years old. —Preceding unsigned comment added by 207.144.39.243 (talk) 19:34, 20 July 2010 (UTC)

an appropriate synonym

when occurring in the brain, an AVM is called a Medusa; AVMs occur anywhere, and there are no capillaries —Preceding unsigned comment added by 76.71.93.151 (talk) 21:19, 21 November 2009 (UTC)

not genetic?

I'd just like to contribute the information that my husband and his brother have now both had cerebral AVM bleeds (MRI and CT scans show numerous AVMs in both their craniums), and they can trace the history of non-cerebral AVM back two generations. His father had one in his spine, and his grandmother in her shoulder. Futhermore, following my husband's bleeds (in 2001 and 2002), a genetic counselor at the hospital (Kaiser) advised us that the condition was genetic and that were we to have children, there'd be a high chance of them inheriting the problem. A brief Google search shows that science thinks it's not genetic, but sufferers do, so I'd appreciate a competent editor modifying this information to clarify.149.142.205.52 (talk) 19:16, 12 May 2010 (UTC)

It is not fleshed out, but it states that isolated AVMs are not genetic, but AVMs are found in a variety of syndromes (e.g. hereditary hemorrhagic telangiectasia, familial cerebral cavernous hemangioma). You are correct that it is unclear, but please allow time for appropriate references to be found.Novangelis (talk) 21:45, 12 May 2010 (UTC)

Pat Martino

Jazz Guitarist Pat Martino is also a survivor of AVM. Cjstanonis (talk) 16:19, 19 February 2011 (UTC)

references

"Emmanuel, Luschka and Virchow first described arteriovenous malformations in the mid-1800s. Olivecrona performed the first surgical excision of an intracranial AVM in 1932." could this be referenced? --159.178.37.53 (talk) 17:04, 18 January 2013 (UTC)

AVM vs cerebral AVM

Hi

I agree with previous commenters that cerebral / brain AVM should be a subsection of this page (or a separate page if that is warranted). This page should be about AVM generally, with more discussion on all forms of AVM. AVM can be anywhere in the body, and the symptoms, treatment and prognosis can differ radically depending on its location. While brain AVM is the most commonly (diagnosed) form, it's important to describe symptoms for all forms.

As AVM, especially outside the brain, is a seldom-diagnosed disorder, the Wikipedia page is often the first thing searchers find when looking for information which often isn't forthcoming from their doctors.

My particular experience is of pulmonary AVM and that is hardly mentioned (although at least it has a heading). Pulmonary AVM is a life-threatening disorder in its own right and deserves more space. The relationship between pulmonary AVM and HHT isn't mentioned. AVM in other parts of the body gets very short shrift.

Having made this plea, I guess this puts the onus on me to do something about the pulmonary AVM section - so I'll try to do that, and possibly suggest an overall edit of the page with 'cerebral' as a subheading. However I feel very unqualified to discuss non-brain, non-pulmonary AVM - so could I make a plea for someone to pick this up?

thanks for listening V1oletv (talk) 07:51, 21 July 2015 (UTC)

External links modified

Hello fellow Wikipedians,

I have just added archive links to one external link on Arteriovenous malformation. Please take a moment to review my edit. If necessary, add {{cbignore}} after the link to keep me from modifying it. Alternatively, you can add {{nobots|deny=InternetArchiveBot}} to keep me off the page altogether. I made the following changes:

• Added archive https://web.archive.org/20141011153700/http://www.cliniclog.com:80/arterio-venous_malformations.php to http://www.cliniclog.com/arterio-venous_malformations.php

When you have finished reviewing my changes, please set the —^{cyberbot II}_{Talk to my owner:Online} 10:29, 25 August 2015 (UTC)

pAVM review

doi:10.1164/rccm.201407-1254CI (2014). JFW | T@lk 06:47, 17 February 2016 (UTC)

Another doi:10.1016/j.ccl.2016.01.001 JFW | T@lk 08:53, 27 June 2016 (UTC)

BTS statement doi:10.1136/thoraxjnl-2017-210764 JFW | T@lk 20:05, 23 September 2019 (UTC)

Avm

I had a avm in my neck. I went to the hospital they didn’t check me out all the way they thought I was going to have a headache. They gave me aspirin and heparin drip. I was bleeding from my spine at that 2601:405:4181:AF90:45CF:85E9:8D1E:3D0C (talk) 05:31, 5 February 2024 (UTC)

So when the heparin drip hit my spinal cord liquid I totally lost my feeling from my waist down. I had surgery and then I had feeling in my feet. So through pt for 2.5 years and I walk with a cane. Iv never gotten my balance back. Candykerr (talk) 05:45, 5 February 2024 (UTC)