Talk:Dystonia

The

The description on this page is taken verbatim from dystonia-foundation.org. They do have a copyright notice (at [1]), and I think this may qualify as copyvio. Suitov 14:07, 9 Jun 2004 (UTC)

Cleaned up by JE on 19.07.2005. Further development to follow with references.

RE: dystonia entry

Hello Veinor,

I received your message and note that all the external links relating to 'dystonia' have now been removed. My non-profit support/research organisation was no different from all of the other organisations listed under EL.

I have read your external links policy and realise that Wikipedia is not a web directory but I would like to point out the information contained on my website does expand on the brief definition on Wikipedia derived from copy taken from the DMRF's website. Your unbiased editors may wish to visit my site and assess the dystonia information for themselves. [www.dystoniaaustralia.org.au]

You have no external links listed under dystonia and yet 'support groups' have their own category under 'essential tremor', another movement disorder. Curiously 'We Move' (one of the organisations previously listed as an external link in the dystonia EL list) is still listed here. It would be great if you could include a support groups section under dystonia as patients with this little-known condition are very much alone in their suffering and sometimes suicidal. If anything, they rely on sites like yours to seek out further information. I hope you reconsider the dystonia orgs data and look forward to hearing from you.

Nicsie 01:25, 16 November 2006 (UTC)

Need to remove the specific reference to Botox which appears as though it is a generic alternative term to botulinum toxin type A. Other commercially available forms of botulinum toxin A have been in use outside of the USA for many years, and these are now being approved for US use. For example Dysport was approved April 29 2009. In addition, if there are to be links to support organizations, then there should be a link to the Benign Essential Blepharospasm Research Foundation, www.blepharospasm.org Pbakalor (talk) 15:28, 2 May 2009 (UTC)

History section

I am watching "Twisted" on PBS and a woman said it was not known in 1972. When was it named? We need a history section.

• It was identified well before then, and the term dystonia was first used in 1911, but it has been very obscure until recently. Most research has been done since the 1980s. Yes, a history section would be good. MeekMark 01:55, 1 February 2007 (UTC)

• • Yeah, it would. I have Writer's Cramp myself, and I want to know about the history of it. 151.201.159.159 (talk) 17:16, 5 January 2008 (UTC)

Dystonia from flu shot theory

I changed the line which said a woman contracted dystonia "immediately" after a regular flu shot to "10 days after" which is the factually accurate statement.Velkyal (talk) 15:22, 15 October 2009 (UTC)

The "likely...coincidence" phrasing seems like a conclusion by the editors. Reportedly, following her vaccination the affected cheerleader came down with the flu first, then the dystonia. There is a connection between infection and dystonia, according to the article. —24.12.160.175 (talk) 02:47, 16 October 2009 (UTC)

See 1:35minutes into the youtube video below: "Doctors..diagnosed her with dystonia. They think it was caused by a severe reaction to the flu shot" So that confirms that as far as the doctors analysis (at least as of the time the video was made)..doctors say she got it from the flu shot and thus do not attribute her dystonia/illness to from the illness she got some days later, but, again, to the flu shot itself. --Harel (talk) 23:56, 17 October 2009 (UTC) Video (key info starts 1:35mins in) at: this is a sad disorder http://www.youtube.com/watch?v=h8riAeGh48U

I think the 'his diagnosis does not exclude thiomersal' paragraph should be removed, as not excluding a cause does not make it likely. Was thiomersal mentioned at all in their diagnosis? Where is the citation? —Preceding unsigned comment added by 63.76.186.202 (talk) 23:23, 22 October 2009 (UTC)

Mentioning thimerosal just poisons the well as it were; nothing indicates it played a role moreso than oxygen or balloons. There is no evidence (arguably negative evidence given the numerous studies) indicating any negative effects from thimerosal in vaccines. Its appearance seems merely to slant the article. —Preceding unsigned comment added by 173.93.219.192 (talk) 00:02, 23 October 2009 (UTC)

The language referring to thimerosal as a "theoretical cause" of dystonia adds no value to this article. 204.40.1.132 (talk) 19:15, 23 October 2009 (UTC)

This article should be written with science based material. News excerpts are not a primary source of information in the context of Dystonia. I am removing this paragraph since there is no academic literature pertaining to this case. At least until more science based information becomes available this paragraph doesn't belong here. McMundy (talk) 22:48, 23 October 2009 (UTC)

The entire article has been written with only 7 footnotes, including no sources for the entire section on symptoms. But since no "science based material" or "academic literature" backs up a very recent diagnosis that has been reported by a reputable news sources, that part of the article has to come out?

You're right the article deserves more sources. I am far too busy in my own education pursuits to edit the whole thing. I do however maintain that in terms of medical and health care related issues, *primary* sources should be used and not news articles/reports which are - secondary sources (i.e. interpretations) of information. McMundy (talk) 00:21, 25 October 2009 (UTC)

Removing the Youtube video references. The video has obviously been edited from the original broadcast. Any references are not considered credible. 174.96.52.131 (talk) 04:34, 2 November 2009 (UTC)

Pallidotomy

is this effective as a cure? Kittybrewster ☎ 20:35, 9 September 2011 (UTC)

==Pallidotomy== is NOT a cure. Can significantly reduce symptoms if done properly and the patient has a fair amount of luck...but can also cause devastating side effects or death due to intraoperative complications such as intracranial hemorhage and stroke. Dedja [[User_talk:Dedja

Diet

I have just removed the following subsection from the Dystonia#Treatment section.

Movement disorders have been known to be associated with a variety of autoimmune diseases, including Sydenham's chorea, pediatric autoimmune neuropsychiatric disorders associated with streptococcus, systemic lupus erythematosus, antiphospholipid syndrome, gluten sensitivity, paraneoplastic and autoimmune encephalopathies. Tremors, dystonia, chorea, ballism, Myclonus, parkinsonism, and ataxia may be the initial and even the only presentation of these autoimmune diseases. Although antibodies directed against various cellular components of the central nervous system have been implicated, the pathogenic mechanisms of these autoimmune movement disorders have not yet been fully elucidated. Clinical recognition of these autoimmune movement disorders is critically important as many improve with immunotherapy or dietary modifications, particularly when diagnosed early.^[1] Some neurologists^[2] find patients with Dystonia benefit through reduced symptoms if they adhere to a strict Gluten-free diet

1. Baizabal-Carvallo, JF; Jankovic J. (20120718). "Movement disorders in autoimmune diseases." Movement disorders : official journal of the Movement Disorder Society Jul. doi:10.1002/mds.25011. PMID 22555904
2. https://kindle.amazon.com/post/MB340cKvQZyD5eYrtMO4sw

• The first four sentences are a copy and paste from the abstract of the cited source. Because the abstract is not released on a relevant free license, we can't reproduce it word-for-word. Anybody should be able to reuse and modify almost anything that appears in Wikipedia - and this is not the case with copyrighted material. Do base your contributions on what reliable sources say, but please change them so they say what the source says - but in entirely different language.
• The copy-pasted content discusses movement disorders associated with autoimune diseases, mentions dystonia (in a list of movement disorders) and says clinical recognition of the autoimmune movement disorders is critically important as many improve with immunotherapy or dietary modifications, particularly when diagnosed early. It doesn't say if any of the dystonias respond to immunotherapy or diet modification or, if any do, which ones.
• The last sentence cites a book outlining the theory of one person. We can't use that as a source. In order to cite that theory - any theory, actually - you will need to demonstrate that it has received significant notice in the scholarly literature (reviewed in peer-reviewed journals, multiple citations in the scholarly literature, etc.), and is taken seriously enough by the author's peers to be worthy of note in a general encyclopedia.

I apologise for this. I know how irritating it can be. But medical content is strictly constrained. The relevant rules for medical content are our sourcing guideline Wikipedia:Identifying reliable sources (medicine) (WP:MEDRS) and Wikipedia:Neutral point of view (particularly the section WP:DUE).

If you don't have library access to the first source above (many med school libraries allow in-person visitors to access their online journal database),

• search PubMed (click "Review" in the left column of the results page) and you may find another recent review covering the same territory or
• ask if one of the helpers at Wikipedia:WikiProject Resource Exchange/Resource Request has access and would be willing to give you a peek. --Anthonyhcole (talk · contribs · email) 13:01, 12 October 2013 (UTC)

External links modified

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Dystonia in psychiatry

I am not knowledgeable on the topic, but psychiatrists also use the terms dystonia, dystonic, syntonic, and so forth in a psychological sense. See, for example:

https://www.whatispsychology.net/what-is-the-difference-between-ego-syntonic-vs-ego-dystonic/#:~:text=Ego%20syntonic%20and%20ego%20dystonic%20are%20both%20terms,are%20in%20conflict%20with%20one%E2%80%99s%20ideal%20self%20image.

Should this use of the term be made part of this entry?

LewisChessman (talk) 23:33, 27 November 2021 (UTC)