Talk:Hereditary multiple exostoses

note

Hereditary Multiple Exostoses has a number of synonyms for this disorder, they include Multiple Osteochondroma, Multiple osteochondromatosis, Exostoses Multiple Cartilaginous, Diaphyseal Aclases, Familial Exostoses, Deforming Chondrodysplasia Hereditary. The pages under these terms should be merged I am just not sure how this is done. This information was authored by Sarah Ziegler and I have the copyrights to this information. I posted this information. If you have any question please email sarahziegler@mheresearchfoundation.org

All the repeated information from the above entries can be found under hereditary multiple exostoses. I have deleted the content and inserted redirects for Multiple Osteochondroma, Multiple osteochondromatosis, and Exostoses Multiple Cartilaginous. I could not find entries for Diaphyseal Aclases, Familial Exostoses, and Deforming Chondrodysplasia Hereditary - if some appear let me know and I will create redirects to this page as well. Able editor 21:30, 22 September 2007 (UTC)

I have given this page a little shake up and hopefully improved it a little along the way - the information contained in the page is not exhaustive but I think it provides a good overview with links to further reading for those who are interested Able editor 21:38, 24 September 2007 (UTC)

References

The external links on this page are good resources but some of the facts need proper references. I will work on this, but if anybody is willing to help...Able editor 22:04, 22 September 2007 (UTC)

I have added some references now - though the genetics section still needs work Able editor 16:15, 23 September 2007 (UTC)

references have been added and formatted to date Able editor 21:35, 24 September 2007 (UTC)

Pain

I added a pain subsection since as a HME patient I know that is very real and overlooked whereas connections to autism are conjectural. — Preceding unsigned comment added by 2A02:A467:CCD6:1:504A:F9DF:4324:935F (talk) 11:53, 16 September 2022 (UTC)

Note

Forgive me as I'm still getting used to how to participate in these things - maybe I'm typing this up in the wrong area? What I want to suggest is that the line which reads - A person with HME is also more likely to develop a rare form of bone cancer called chondrosarcoma as an adult, be edited to say the same thing but with less emphasis on 'more likely'. I say this because it reads at present as though it's more likely that someone with the disorder is more likely to get bone cancer than NOT - if you see what I mean? I stress the importance of phrasing it such as I have four children whio all suffer from the abnormality. When reading it I wouldn't want them thinking they were 'more likely' to get cancer than not get it which is one way the current form of the sentence can be interpreted.

Ben OzScot (talk) 04:01, 1 February 2008 (UTC)

Thanks for your note. Have the recent changes adequately addressed your concerns? WhatamIdoing (talk) 03:11, 2 February 2008 (UTC)

Perfect - thank you. Higher risk is far more suitable to 'more likely' - Much appreciated. OzScot (talk) 03:19, 2 February 2008 (UTC)

External links modified

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Patient input

As someone who has MHE, I wanted to upload the pictures of my mother's skeleton to graphically show the bone growth after surgery. I also have a list of abstracts, but I am not sure what is appropriate to put in Wikipedia. LoveElectronicLiterature (talk) 18:39, 13 November 2023 (UTC)

Collated information on MHE

I have collated information about MHE and many references at tiny url slash MHETalk. I did this for self-defense, as I have this disease and I have needed to go to many sources about heparan sulfate. I am not sure how much information should be provided? LoveElectronicLiterature (talk) 21:03, 4 October 2024 (UTC)