Talk:Hunter syndrome

Comments

The article should define what "GAG" is. Joelthelion (talk) 09:04, 16 October 2014 (UTC)

A child with Hunter syndrome was central to this murder case. 217.33.74.20 12:52, 12 December 2005 (UTC)

There are more children with Hunter syndrome. His disability was not the cause of this "mercy killing". JFW | T@lk 15:52, 12 December 2005 (UTC)

The whole section about therapy seems to be taken from a Shire press release. I think it should be cut. 194.103.189.24 13:02, 13 September 2007 (UTC)

I agree with the concept of moving the drug information over to the other article. However, I don't think we should just cut an entire section just becasue it mimics its source. As long as the information is valid and isn't a blatant advertisement, then it should stay. If it's a concern, we should rewrite that section. —Preceding unsigned comment added by 71.107.12.179 (talk) 00:56, 28 September 2007 (UTC)

I agree that the shpeal about Elaprase is extremely biased and should be re-written or cut. First, the "statistical significance" of the results are over-emphasized. The respiratory change in predicted forced vital capacity was not found to be statistically significant, and the 35m increase in distance walked over 6 minutes may be statistically significant but is debatably clinically significant. The hypersensitivity is underemphasized - while only 11 of 96 patients actually had severe infusion reactions, 51% developed the IgG antibodies, which correlate to a higher risk of a severe reaction (that statistic is hinted at, but not explained). Considering the high cost, high risk, and very limited benefit of this drug, it is difficult to imagine a third party wrote that section. 24.18.113.237 (talk) 17:27, 8 August 2011 (UTC)

I highly agree about the Bias on Elaprase and a citation is needed.Sjbucaro (talk) 17:54, 10 January 2012 (UTC)sjbucaro, Jan 10, 2012.

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Weasel Words Throughout

This article is poorly written and ambiguous to the point of being without value. Under the "Treatment" section, we read:

'Because of the very specific nature of the illness, treatment has been proven very difficult. The treatment for this disorder is specifically determined for each patient, because all cases are different.'

What does that even say? To me, it says it's impossible to treat because they can't define it. That's bad medicine in my book. 98.194.39.86 (talk) 12:17, 15 November 2017 (UTC)