Talk:Protein C deficiency
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Hi, my name is Brad. I was born in colorado, i rescently moved to Rhode Island, to live with family. I am 25 years old and I have Protein C Deficiency. The first time I heard that I had it was when I turned 17 years old. I had a pain in my right leg that moved up from my ankle to my groin. I didnt know what it is was because I had no signs of having a blood clot besides the pain in my leg but it felt like I pulled a muscle. After I had the pain for about 2 weeks I went to the hospital and they did a altra sound on my leg and they found out that I had mutiple clots in my leg. So they admited me into the hospital. They put me on lovinox for about 6 six days twice a day. The last day they asked me if I wanted to go home and I told then I will stay one more night. That night my heart stopped and I woke up to the preist reading me my last rights. I didnt know what was going on until I heard that one lung was 98% filled with clots and the other one was 60% filled. They gave me a choice to stay there or get flight for life to another hospital that had better treatment then what i was getting. They said if I do that then I would have a 30% chance of living. Of course I did the flight for life to the other hospital, where there they gave me hemprin. And after 7 days on that I went home and I had to learn how to walk again bc when I was in the hospitals they told me not to move at all. Since then I been in the hospital for clots one time that is it, but they put me on coumadin for the rest of my life.
My name is Kelly and I was 19 when I broke my back and two months later I devolped a pain in my left thigh and thought it was a pulled muscle. After a couple of weeks of that pain I thought that I was going to die on night I told my parents that my heart hurt and that pain never did leave. The drs didn't know what to thing, I had pain in my leg that I told them that it felt like a pulled muscle and my heart hurt and by that time my whole chest hurt. I never did tell them that I was on birth control, but they did know about my back. I should have told them that my mom and grandma had bloodclotd through out their lives, that could have help too. When they finally figured out what it was thanks to a nurse, I had a clot from my knee into my pelvis and multiple PEs in my left lung. It was hell!! I have had clots with my pregnancies usually after because they have had to give me blood during labor, but so far they have been very small. I will be on blood thinners the rest of my life I think. You can reach me by email at [email protected] if there are any questions or thoughts on this subject. Interesting side thought. After this happened with me, my mom, grandma, and my moms sister have all been diagnoised with Protein C Dif. —Preceding unsigned comment added by 216.241.199.200 (talk) 03:35, 16 September 2010 (UTC) |