Talk:Pulmonary Hypertension Association

Outdated language--- why is PHA referred to as "the Association"? Also the help line is the "patient to patient support line." El9984a (talk) 17:52, 21 September 2010 (UTC)

History---Three female pulmonary hypertension patients came together in 1987 with the hope of reaching other PH patients. The goal was to connect PH patients with one another, help locate PH specialists and centers, form support groups, and publish a newsletter about the PH community. In 1990 the women started mailing newsletters, Pathlight, to about 100 people and a fourth woman soon connected with the three PH patients and the United Patients Association for Pulmonary Hypertension (UPAPH) was formed. UPAPH officially changed its name to the Pulmonary Hypertension Association (PHA) in 1997 and hired its first full time staff member in 1999. The organization has grown to over 10,000 members who include patients, family members, and medical professionals. PHA was founded through the spirit of volunteers and continues to exist, in part, due to an active patient community. Equestrian1242 (talk) 19:50, 16 November 2010 (UTC) Please see my user page. I am editing on behalf of PHA. I understand and respect the conflict of interest guidelines but there is a lot of wrong or outdated information on this page. Please edit this as you see fit.