Kelly.tuchman

Your submission at Articles for creation: The Bobby Jones Chiari & Syringomyelia Foundation (May 15)

Your recent article submission to Articles for Creation has been reviewed! Unfortunately, it has not been accepted because it included copyrighted content, which is not permitted on Wikipedia. You are welcome to write an article on the subject, but please do not use copyrighted work.

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Dan arndt (talk) 05:22, 15 May 2022 (UTC)

Hello, Kelly.tuchman! Having an article draft declined at Articles for Creation can be disappointing. If you are wondering why your article submission was declined, please post a question at the Articles for creation help desk. If you have any other questions about your editing experience, we'd love to help you at the Teahouse, a friendly space on Wikipedia where experienced editors lend a hand to help new editors like yourself! See you there! Dan arndt (talk) 05:22, 15 May 2022 (UTC)

Thank you! Kelly.tuchman (talk) 01:37, 19 May 2022 (UTC)

Your submission at Articles for creation: The Bobby Jones Chiari & Syringomyelia Foundation (August 13)

Your recent article submission to Articles for Creation has been reviewed! Unfortunately, it has not been accepted at this time. The reason left by S0091 was:  The comment the reviewer left was: Please check the submission for any additional comments left by the reviewer. You are encouraged to edit the submission to address the issues raised and resubmit after they have been resolved.

• If you would like to continue working on the submission, go to Draft:The Bobby Jones Chiari & Syringomyelia Foundation and click on the "Edit" tab at the top of the window.
• If you do not edit your draft in the next 6 months, it will be considered abandoned and may be deleted.
• If you need any assistance, or have experienced any untoward behavior associated with this submission, you can ask for help at the Articles for creation help desk, on the reviewer's talk page or use Wikipedia's real-time chat help from experienced editors.

S0091 (talk) 16:14, 13 August 2022 (UTC)

September 2022

Please stop your disruptive editing. If you continue to add promotional or advertising material to Wikipedia, you may be blocked from editing. S0091 (talk) 16:03, 4 September 2022 (UTC)

Dear S0091, I am new to editing, please allow me to give you background on what I was trying to accomplish and maybe you can tell me if it can be done. I am a nurse for an office that works with patients with Ehlers Danlos Syndrome, which is rare and can cause disabling complications, and many go years without a diagnosis. Many patients and internists do not have enough information on the disorder and comorbidities. The Ehlers Danlos Society and Bobby Jones Chiari and Syringomyelia Society are both charities which provide educational resources to patients and doctors on the disorders as well as research into treatments and genetic registries to find genetic causes to the disorders. I had seen external links and subsections on other wikipedia disease pages for related supportive charities and registries (e.g. World Parkinson Disease Association and PDGENE – Database for Parkinson's Disease genetic association studies on the Parkinsons Disease page).

I thought having external links to related resources was allowed. I had put a conflict of interest when trying to create a wikipedia page for the Chiari and Syringomyelia Society to be on the safe side, I work for a doctor who has lectured for them and is on their Executive Committee, however I personally am not a member of their society, nor am I an employee of theirs or on their payroll. I have helped my doctor with research in the past, but am paid from his office, if he gets funding from the society for research, I am not made aware of the details but I wanted to state the conflict of interest just in case he does. I do not have a conflict of interest with the Ehlers Danlos Society, I have no association with them. I put both the Ehlers Danlos Society and the Bobby Jones Chiari and Syringomylia Foundation on the external links for several comorbidities associated with Ehlers Danlos Syndrome for which we often see patients. If the link for the Bobby Jones CSF was taken down because the wikipedia page is not yet created as I'm still trying to establish its notability, the Ehlers Danlos Society had a pre-existing page from several years ago and would have had notability already established. I thought I had also seen that the notability guidelines were not as stringent for items in an existing article vs creating a new article.

My main goal is to get the links to the doctor and patient education resources/lectures linked to the conditions. My draft for the Bobby Jones CSF page has more of the fundraising information on it, because most of the third party resources I found had mention about the fundraisers when I was trying to establish notability (The most recent draft only had news articles reporting from after the events, not ones advertising them). I think this is common for them to report on for charities, whereas the educational material is from the page website, which I can't use to establish notability. I would be happy not to have the fundraising information on the CSF page if I am able to establish notability without them.

(Kelly.tuchman (talk) 16:53, 12 September 2022 (UTC)KT)

Hi Kelly, I think what may be difficult for you is being dispassionate so you are not editing as an advocate. Advocacy is not allowed on Wikipedia, anywhere in any form and sometimes what a person may believe is "helpful information", is advocacy from an encyclopedic perspective. Not that the information isn't helpful; it may be, but does not belong in an encyclopedia article (i.e. good information, wrong forum). What I suggest doing is making edit requests on the articles' talk pages, starting with one article and only regarding Ehlers-Danlos Society since it does have an article (although a poor one, riddled with COI and/or advocacy editing and actually may not even meet the notability criteria - see WP:OTHERSTUFFEXISTS) and see how that goes before trying another article. As for the draft, things like the BBB are directory listings and the coverage of the events offer little about the charity itself. Those sources are fine to use for verification purposes (they are accredited, an event occurred, etc.) but notability is a separate issue requiring in-depth coverage from multiple sources meeting the sourcing criteria. You may find WP:42 helpful along with reading the notability and sourcing guidelines for organizations. If you do resubmit the draft, I highly suggest posting on the draft's talk page the best three sources that demonstrate notability (see WP:THREE). S0091 (talk) 17:57, 12 September 2022 (UTC)

Also, given your profession, you may find WikiProject Medicine of interest. S0091 (talk) 18:27, 12 September 2022 (UTC)

Thank you for the suggestions, I will try the initial edit request and using the draft talk page...I did not think the BBB would be great but saw other charities that used it as their first reference, so wasn't sure. There are so many guidelines to look through and I've never done anything with codes before! (Kelly.tuchman (talk) 22:00, 12 September 2022 (UTC)KT)

Concern regarding Draft:The Bobby Jones Chiari & Syringomyelia Foundation

Hello, Kelly.tuchman. This is a bot-delivered message letting you know that Draft:The Bobby Jones Chiari & Syringomyelia Foundation, a page you created, has not been edited in at least 5 months. Drafts that have not been edited for six months may be deleted, so if you wish to retain the page, please edit it again or request that it be moved to your userspace.

If the page has already been deleted, you can request it be undeleted so you can continue working on it.

Thank you for your submission to Wikipedia. FireflyBot (talk) 19:02, 12 March 2023 (UTC)

Your draft article, Draft:The Bobby Jones Chiari & Syringomyelia Foundation

Hello, Kelly.tuchman. It has been over six months since you last edited the Articles for Creation submission or Draft page you started, "The Bobby Jones Chiari & Syringomyelia Foundation".

In accordance with our policy that Wikipedia is not for the indefinite hosting of material deemed unsuitable for the encyclopedia mainspace, the draft has been deleted. When you plan on working on it further and you wish to retrieve it, you can request its undeletion. An administrator will, in most cases, restore the submission so you can continue to work on it.

Thanks for your submission to Wikipedia, and happy editing. Liz ^{Read! Talk!} 19:34, 29 March 2023 (UTC)