Sfterry

Undoing edits

Hello, Sfterry. I don't understand why edits made (initially) by me on pseudoxanthoma elasticum were undone.[1] If you had given an edit summary it may have been more straightforward. It is generally considered as undesirable to undo edits without comments unless they are obvious vandalism - something that cannot be leveled against my edits.

I intend to update the article using PMID 15894595. This article is a good source for the genetic details of ABCC6 mutations, and quite comprehensively cites the clinical picture of PXE. I hope you can agree to that.

From your username I deduce that you are related to Patrick F. Terry. Are you Sharon Terry? In any case, please be aware that there are guidelines on editing pages about yourself etc, see WP:COI. JFW | T@lk 06:36, 23 July 2007 (UTC)

Sorry - I have only one motive - excellent information for individuals affected by pseudoxanthoma elasticum (PXE). I have, with my medical director, Lionel Bercovitch, examined over 400 individuals with PXE and collected medical records on over 600 patients. I coordinate 36 laboratories working on PXE. I have convened two consensus conferences on PXE in the last 5 years and am about to start a clinical trial at NIH. I think that is enough background to make edits on a rare disease entry. In addition, I am the president and CEO if Genetic Alliance and oversee the capacity building in 600 disease specific advocacy organizations covering 1000 genetic conditions and I am the founder of WikiGenetics and WikiAdvocacy. So I make my edits on the basis of my expertise. Sharon F. Terry Sfterry

Thanks for improving the PXE article. I'm glad you've implicitly agreed with my expansion of the article. As I've stated in my earlier email, I'm impressed with your contributions to this complicated field of medicine, and obviously your expertise is very much invited on Wikipedia. It would be entirely helpful if you could convince like-minded experts to assist in improving Wikipedia articles. This would certainly improve both the Wikipedia articles in question and the information available to patients (and their carers) with rare genetic conditions.

I'm glad you're willing to contribute images under the GNU Free Documentation License. Let me know if you need any assistance. JFW | T@lk 19:15, 25 July 2007 (UTC)

Changes

You made some rather sweeping changes to the PXE article, including the replacement of a key reference (Chassaing) with a somewhat newer paper that is not a review but a case series. Of note, the new paper does not include some of the facts that the Chassaing paper introduces (e.g. the oblique mental crease, the pseudo-PXE observed in sickle cell disease). Finally, you removed mention of premature atherosclerotic disease, using the Pfendner reference to back this up, but the paper does not seem to discuss this at all (apart from saying that myocardial infarction is rare).

I have changed things back to a large extent (especially restoring the Chassaing paper), but I have added the Pfendner paper in the "pathophysiology" section, together with the Schulz paper (because it expressly disproves the findings of that paper). JFW | T@lk 06:10, 19 October 2007 (UTC)

I saw you also deleted the Trip paper, with the edit summary that this association had been disproven. It seems the Trip paper made quite an impact, so it would have been more helpful if you had left the paper in place but added references that show that the association could not be confirmed. JFW | T@lk 09:30, 19 October 2007 (UTC)

PXEI

I note your creation of PXE International. I hope you don't mind I've tagged it with {{wikify}}, because most of the article lacks links.

Could I draw your attention to WP:COI, our "conflict of interest" guideline. I am not suggesting your article is biased, but some of the content could be toned down to sound more neutral. JFW | T@lk 09:32, 6 March 2008 (UTC)

I give up working in Wikipedia. I will delete it. I have started two other wikis to serve the disease advocacy community with accurte information since people who don't know about these conditions continue to modify entries.

Could you urgently clarify whether Kinuvian (talk · contribs) is an alternative account used by yourself? Its only creation is Sharon F. Terry, which is remarkably similar in style to Patrick F. Terry and the PXEI page. I am not questioning your motives, but use of undeclared alternative accounts is discouraged. JFW | T@lk 09:53, 6 March 2008 (UTC)

I have no idea who did - I will delete it since I have no need for a Wikipedia entry.

March 2008

Please do not move a page to a title that is harder to follow or move it unilaterally while discussion about it is underway. We have some guidelines to help with deciding what title is best for a subject. If you would like to experiment with page titles and moving, please use the test Wikipedia. Thank you. Cenarium (talk) 18:00, 9 March 2008 (UTC)

Deletion

If you want the article be deleted, tag it with {{db-owner}}. But don't move pages like this, it's considered vandalism. Cenarium (talk) 18:04, 9 March 2008 (UTC)

Thanks!Sfterry (talk) 18:05, 9 March 2008 (UTC)

In fact, it's {{db-author}}. Cenarium (talk) 18:07, 9 March 2008 (UTC)

{{db-author}} doesn't apply if you aren't the creator, if you want Sharon F. Terry deleted, you must log in with the other account and say that you are the same person. Though I have to tell you that deletion is not automatic. In its current state, PXE International is likely be kept, other editors have invested time there. Cenarium (talk) 18:21, 9 March 2008 (UTC)

I am not the author, but got a message about it from someone who thinks it has no place on Wikipedia. I agree and don't need or want a page about me - I am not a famous or noteworthy person. It will get deleted anyway since whomever told me about it said it did not meet Wikipedia's requirements.

AfD nomination of PXE International

I have nominated PXE International, an article you created, for deletion. I do not feel that this article satisfies Wikipedia's criteria for inclusion, and have explained why at Wikipedia:Articles for deletion/PXE International. Your opinions on the matter are welcome at that same discussion page; also, you are welcome to edit the article to address these concerns. Thank you for your time. Cenarium (talk) 18:35, 9 March 2008 (UTC)

This was an automatic template, in fact, I do feel that this article has its place on Wikipedia, you are free to participate to the discussion. Cenarium (talk) 18:38, 9 March 2008 (UTC)

Copyright problems

Hello. Concerning your contribution, PXE International, we cannot accept copyrighted text or images borrowed from either web sites or printed material without the permission of the author. This article or image appears to be a direct copy from http://www.pxe.org/english/view.asp?x=1573. As a copyright violation, PXE International appears to qualify for deletion under the speedy deletion criteria. PXE International has been tagged for deletion, and may have been deleted by the time you see this message. For text material, please consider rewriting the content and citing the source, provided that it is credible.

If you believe that the article or image is not a copyright violation, or if you have permission from the copyright holder to release the content freely under the GNU Free Documentation License (GFDL) then you should do one of the following:

• If you have permission from the author, leave a message explaining the details at Talk:PXE International and send an email with the message to "permissions-en (at) wikimedia (dot) org". See Wikipedia:Requesting copyright permission for instructions.
• If a note on the original website states that re-use is permitted under the GFDL or released into the public domain leave a note at Talk:PXE International with a link to where we can find that note.
• If you own the copyright to the material: send an e-mail from an address associated with the original publication to permissions-en(at)wikimedia(dot)org or a postal message to the Wikimedia Foundation permitting re-use under the GFDL, and note that you have done so on Talk:PXE International.

However, for text content, you may want to consider rewriting the content in your own words. Thank you, and please feel free to continue contributing to Wikipedia. Note that some editors have expressed that the organization may merit an article, so you might consider editing the article, based on reliable sources. — ERcheck (talk) 19:24, 9 March 2008 (UTC)

I am the author of both this and the website you cite, so I don't need permission - but this is too complicated for me to spend time on, so please speedily delete the page. I tried deleting it and was told to place the delete tag on it - hopefully it will be gone soon and you all won't have to spend your time on it. I have created a wiki for disease specific organizations so we don't have to figure out all of these difficult rules you have here. Wikipedia is not for common folks like it once was!Sfterry (talk) 19:31, 9 March 2008 (UTC)

Speedy deletion of Patrick F. Terry

A tag has been placed on Patrick F. Terry requesting that it be speedily deleted from Wikipedia. This has been done under section G12 of the criteria for speedy deletion, because the article appears to be a blatant copyright infringement. For legal reasons, we cannot accept copyrighted text or images borrowed from other web sites or printed material, and as a consequence, your addition will most likely be deleted. You may use external websites as a source of information, but not as a source of sentences. This part is crucial: say it in your own words.

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If you think that this notice was placed here in error, you may contest the deletion by adding {{hangon}} to the top of the page (just below the existing speedy deletion or "db" tag), coupled with adding a note on the talk page explaining your position, but be aware that once tagged for speedy deletion, if the article meets the criterion it may be deleted without delay. Please do not remove the speedy deletion tag yourself, but don't hesitate to add information to the article that would would render it more in conformance with Wikipedia's policies and guidelines. Cenarium (talk) 20:27, 9 March 2008 (UTC)

Orphaned non-free image (Image:PXElogo72.jpg)

⚠

Thanks for uploading Image:PXElogo72.jpg. The image description page currently specifies that the image is non-free and may only be used on Wikipedia under a claim of fair use. However, the image is currently orphaned, meaning that it is not used in any articles on Wikipedia. If the image was previously in an article, please go to the article and see why it was removed. You may add it back if you think that that will be useful. However, please note that images for which a replacement could be created are not acceptable for use on Wikipedia (see our policy for non-free media).

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Conflict of Interest

I see you have been editing extensively the page on Genetic Alliance, an organization of which you are the president. the article makes extensive use of your web pages, and has a very high ratio of promotion to informative information, and a great deal of public relations jargon.

Please see our rules about Conflict of Interest. As it says there, even with Conflict of Interest you may edit, provided you do so objectively. It is not advised, because experience shows that a person will have great difficulty writing an objective article about themselves. As a general rule, a suitable page will be best written by someone without Conflict of Interest; it's not impossible to do it properly with a conflict of interest, but it's relatively more difficult: you are automatically thinking in terms of what the organization wishes to communicate to the public, but an uninvolved person will think in terms of what the public might wish to know. I have the highest respect for your work, but we need to remain a consistent neutral style, even for the most praise-worthy of enterprises.

In using previously published or posted material, you must explicitly license the rights to the material according to our licensing, using the CC-BY-SA and the GNU licenses, as explained in WP:COPYRIGHT and WP:Donating copyrighted materials ; be aware that these licenses give everyone in the world an irrevocable license to reuse and alter the material, even for commercial purposes. I would however urge you not to bother with this rather intricate procedure, for such content is generally so unencyclopedic that it would need to be rewritten.

I've rewritten most of the article, and intend to do a little more. If you'd like to help, please do not re-add the material I've removed, but add a descriptive sentence or two (along with a 3rd party published reference) about specific major activities of the group. It would also help to have a clear statement about the relationship with similarly named groups in other countries, such as Genetic Alliance UK . If you need any help in this, ask me on my talk page. DGG ( talk ) 01:17, 5 March 2011 (UTC)

Bio

Hi Sfterry

I have added the {{notability}} tag to what appears to be your biography (which was created by a user who has made no other edits to the encyclopedia and has also been edited frequently by you). Please review the provision of Wikipedia's notability guideline for biographies. Being quoted, without in-depth coverage, doesn't confer it.

I suggest that it would be more appropriate for a brief summary be mentioned at Genetic Alliance and that this article be replaced with a redirect to that one. Before commencing proceedings for the community to evaluate that approach, as a courtesy I'm asking your views first.

Regards, ^Bongo_matic 22:47, 27 March 2011 (UTC) Should you wish to reply, please do so here. I will watch this page for a few days, so no {{talkback}} or other comment on my talk page is required.

Someone at Ashoka told me they put that entry up - so I don't think they would care to have it at Genetic Alliance since I am working on projects with Genetic Alliance, Ashoka and PXE International. I am in a category like these people: http://en.wikipedia.org/wiki/Margaret_A._Anderson http://en.wikipedia.org/wiki/James_Heywood I am the founder of 8 nonprofits, all of which are making meaningful progress in the healthcare, and music space, elected to Ashoka as one of 100 social entrepreneurs in the USA for my noteworthy work - however, I have not edited the entry to put all of that in - I learned long ago to leave Wikipedia do what it will, since there are people who care a great deal about things here, and i only use it casually. I even tried to correct the entry for pseudoxanthoma elasticum (PXE) so that it is correct, and not just the view of one scientist, but I cannot find time to play the editing war - even though I am the world's foremost authority on the disease. So you should do what you wish.

File:PXElogo300.jpg listed for deletion

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File permission problem with File:Sharon F Terry headshot 2013.jpg

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File permission problem with File:GAcolor3002cm.jpg

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If you have uploaded other files, consider checking that you have provided evidence that their copyright owners have agreed to license their works under the tags you supplied, too. You can find a list of files you have created in your upload log. Files lacking evidence of permission may be deleted one week after they have been tagged, as described on criteria for speedy deletion. You may wish to read the Wikipedia's image use policy. If you have any questions please ask them at the Media copyright questions page. Thank you. Eeekster (talk) 20:50, 16 November 2013 (UTC)

Thanks, I sent the permission for the first one, and uploaded a new png for the second - I am the designer and own the image - it is a logo of our organization. Sharon F. Terry 21:02, 16 November 2013 (UTC)sfterry

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