User talk:Strangelv/MEproject

Additions and removals

Strangelv, please feel free to change anything I added last night. I felt too lazy to start a discussion page. Ward20 (talk) 18:21, 8 April 2008 (UTC)

Go right ahead and make more changes. By definition, this isn't a solo project. 8) ...And now it's my turn to get some sleep... -- Strangelv (talk) 19:13, 8 April 2008 (UTC)

Hillenbrand Project?

Laura Hillenbrand, has been about the most open of any notable figure with very severe ME/CFS recently (in the US). We could write her for permission to use her name on the project. I don't think her name carries any baggage about POV, and the mascot could be a horse. Everyone likes a long shot never give up type of story. Ward20 (talk) 18:00, 10 April 2008 (UTC)

I'm not sure about using a living person as a mascot, but you might want to put your idea on the main page. After all, I put the Damn Disease suggestion up there. 8) -- Strangelv (talk) 00:51, 13 April 2008 (UTC)

I saw that and laughed. Hillenbrand would be the figurehead, The horse Seabiscuit might be the mascot, It's a USA thing if you are not from there. Ward20 (talk) 03:24, 13 April 2008 (UTC)

Actually, I'm a near-lifetime resident of North Texas. I just ::::never read the book or saw the movie: Horseracing doesn't appeal that strongly to me. -- Strangelv (talk) 12:57, 13 April 2008 (UTC)

The movie has little to do with the illness, so the link would not be obvious. How about Remember us?

I'm personally strongly leaning towards Jagra's suggestion of Post-Infectious and simply accept whatever unintended additional scope that brings us -- it ensures we have at least the scope we want to have -- unless GWF can't be non-controversially included as post-infectious.

I'm also failing to find precedents for such a type of wikiproject name, and we have enough troubles without a wikiproject name that might invite still more. -- Strangelv (talk) 14:49, 18 April 2008 (UTC)

How about "disease of 1000 names" it has historical usage and is very NPOV. After reading the Nov 2007 CFSAC meeting minutes it appears Reeves may have another broadening of the US CFS definition in the hopper, and is objecting to the US CFS/ME name change. Ward20 (talk) 19:45, 18 April 2008 (UTC)

Could you list your suggestions on the project page? -- Strangelv (talk) 19:51, 18 April 2008 (UTC)

Organizations

Other language versions of Wikipedia haven't shared our aversion to linking to patient and advocacy groups. Their pages could be a good starting point for obvious ones to consider creating articles for.

• http://de.wikipedia.org/wiki/Chronisches_Ersch%C3%B6pfungssyndrom#Weblinks
• http://ja.wikipedia.org/wiki/%E6%85%A2%E6%80%A7%E7%96%B2%E5%8A%B4%E7%97%87%E5%80%99%E7%BE%A4#.E5.A4.96.E9.83.A8.E3.83.AA.E3.83.B3.E3.82.AF
• http://sv.wikipedia.org/wiki/Kroniskt_tr%C3%B6tthetssyndrom#Externa_l.C3.A4nkar —Preceding unsigned comment added by Strangelv (talk • contribs) 18:07, 13 April 2008 (UTC)

I see, however, a long array of notability disputes on the horizon. Perhaps it would be advisable to create articles by country, e.g. ME/CFS in Canada. Guido den Broeder (talk) 09:21, 18 April 2008 (UTC)

Ugh. Good point, and I need to not notice them burning down huge chunks of the great library or I won't be able to continue meaningfully participating here (again) -- ME/CFS organizations? Maybe then split off as needed by country or international to let groups with potential notability challenges avoid peril? -- Strangelv (talk) 14:24, 18 April 2008 (UTC)

Project name ME-CFS

I thought of ME&CFS and ME-CFS. The first one would be my preference, but unfortunately becomes ME%26CFS in a URL, but the second one seems to be OK in a URL. How about it? I'll add it to the list of candidates for consideration. - Tekaphor (talk) 08:34, 26 April 2008 (UTC)

Done, plus I added another 2 of similar structure, totalling 4 new suggestions. - Tekaphor (talk) 08:47, 26 April 2008 (UTC)