Thank you for joining the...
Rare Disease Day 2016 Edit-a-thon
This event has already taken place!
In honor of Rare Disease Day, we added information to rare disease articles about how people can find community support.
Anyone was welcome to attend. If you were a newcomer, you would have made your first edit on Wikipedia by the end of the event!
Not in DC? Check out our sister event in St. Louis, MO or participate remotely.
when
- Monday, February 29, 2016 at 6:00 pm – 8:00 pm ET
where
- MLK Public Library
- 901 G St. NW
Metro Center on Red Line
your hosts
- James Hare and (remotely) Veronica Erb
Event information
edit- Date: Monday, February 29, 2016
- Time: 6:00 pm – 8:00 pm ET
- Location: Martin Luther King Jr. Library's Dream Lab at 901 G St. NW, Washington, DC 20002
- Cost: Free!
- Please bring your own laptop. If you cannot bring one, let us know ahead of time, and we'll try to find one for you.
What to expect
editNo Wikipedia editing experience necessary; as needed throughout the event, tutoring will be provided for Wikipedia newcomers. If you are unfamiliar with Wikipedia, you can get a head start with this this training module.
Resources for editing
editAttendees
editPlease add your Wikipedia username to the appropriate section below (signatures are created by saving four tildes [~] in a row). To best avoid technical complications, create a Wikipedia account prior to the event. We will also offer assistance to create accounts on-site.
In person
editRemote
editEverything you need to help out should be on this page. If you have questions or want to share exciting discoveries, you can comment on the event Talk Page or even tweet with #RareDiseaseDay #editathon. For even faster help, Tweet directly at @verbistheword.
- ...
What to edit
editMost Wikipedia articles about diseases use a standard set of sections. This edit-a-thon focuses on adding community support information to the section called "Treatment", or sometimes, "Management".
- Select a rare disease article of your choosing. If you can't decide, we can help ya.
- Take a look through the article. Make sure it doesn't already contain information about the organizations that support people affected by the disease.
- Look up the disease in NORD's database.
- Scroll down to the database entry's "Supporting Organizations" section.
- Mention the organizations listed by NORD in the article's "Treatment" or "Management" section. (See template below.)
- Add CITATIONS! Start by citing the NORD database page. If you can find some other reliable sources, use them, too.
If you get stuck, ask for help. And, if it's too hard to find information for the article you choose, it's fine to switch to a different article!
We hope you'll add this information to at least one article. If you have time and energy for more, that's great, too!
Template for "Treatment" or "Management" section
editFollow the steps above to complete and add this template to the "Treatment" or "Management". Don't forget citations!
- People affected by [disease] are supported by multiple organizations, including [name], [name], and [name].
Articles created/improved
editArticles that participants have created or worked to improve.
- Pseudomyxoma_peritonei added category, ORPHA number
- Urea cycle disorder - many improvements
- Patient Innovation - improved footnotes and grammar
- Inborn error of metabolism